Saturday, November 7, 2009

For those in favor of genetic testing

For those people that are in favor of genetic testing, I say the following:

"I wish genetic testing to reveal birth defects would stop - there are many "normal" kids that lose their lives because of false positives, and many BEAUTIFUL children with Down Syndrome are destroyed. I encourage people that if they get tested, and have a positive test come back, PLEASE run, and not walk, to an organization in your area and get all the information you can. Meet with people who have Down Syndrome. It is NOT the death sentence for you that you think it is. These people have wonderful lives because they ARE wonderful! I have a 17 year old son who can run circles around any "normal" teen his age. He gives lots of love, AND he does so many things to help around the house, it could make your head spin! Everybody that works with him, loves him. You would deny your child that just because he would happen to be born with Down Syndrome? What if your parents aborted you because they knew you would have brown eyes and not blue? Your child does not choose to have Down Syndrome, but that does NOT make him any less of a human being. Matter of fact, it makes them a BETTER human being. Ask anybody that has a child with Down Syndrome, I'm positive they will tell you the same thing!"

Saturday, October 31, 2009

Halloween 2009





Friday Stephen was in a play at school - He was the pirate on the left. Another picture of him is at the reception after the play. The other boy pictured with him is his friend Billy who is in his class. The last picture is of him passing out candy to the trick or treaters! He loves Halloween, and so do I!

Sunday, October 4, 2009

SLEEPOVER!!!





Stephen got invited to his first sleepover where the person was not a relative! His friend from school invited him. Here's some pics! I've also added a few pics of the historic town - Ft. Leavenworth, KS!

Wednesday, September 30, 2009

It's that time of year again!




Stephen likes this time of year - he knows when he sees pumpkins, it means he will be seeing ghosts and going trick or treating with his daddy! Here's some random pics we took today!

Saturday, September 26, 2009






I wanted to thank the football coach and the lady that made the First Downs for Down Syndrome poster at my son's school. The coach has made my son and another boy in his class that both have DS honorary captains on the football team and they do the coin toss at all the home games! I ordered some special cookies for them and the boys delivered them during school! The coach and the lady were shocked and happy! The boys got high fives and hugs out of the deal!!! One good turn deserves another, I always say! Here's some pics of the cookies!

Wednesday, September 23, 2009

I Have A Voice

What a wonderful video to watch!


Wednesday, September 16, 2009

Sometimes it's the simple things


Today we went shopping at Target for a friend's upcoming birthday. After we were done shopping, Stephen wanted to sit in the circle out in front. He's fascinated by that circle. Sometimes it is the little things in life that brings us the most pleasure! You can learn alot from Stephen. You can learn to enjoy the time you are given on Earth. Sometimes I have to slow down so I can remember that lesson. Thank you Stephen. I love you.

Monday, September 14, 2009

Hot off the Press!


Here's a newspaper article about First Downs for Down Syndrome and my son's high school. It has a great picture of the kids in his class that participated in the event!

Saturday, September 5, 2009

First Downs for Down Syndrome





Stephen's school is participating in First Downs for Down Syndrome this year.

The History of First Downs

For Down Syndrome

The concept of First Downs for Down Syndrome was created by Gene Stallings, best known for his outstanding football coaching career. Gene was assistant coach at Texas A&M, Alabama, and with the NFL’s Dallas Cowboys. He went onto head coaching duties at Texas A&M, the St. Louis and Phoenix Cardinals and finally, concluded his coaching career as head coach at Alabama.

In his book, Another Season: A Coach’s Story of Raising an Exceptional Son, Gene tells a personal story about winning national championships…and about raising and loving a son born with Down Syndrome. Gene started the FDFDS concept to raise funds and awareness.

In the early ‘90s, local parents learned about the First Downs concept of teaming professional football players with fundraising for Down Syndrome organizations, and thought it was a perfect idea for partnering with the Kansas City Chiefs.

The funds raised by FDFDS support two local organizations: the Down Syndrome Guild of Greater Kansas City—which provides education and support to individuals with Down Syndrome and their families; and the Down Syndrome Clinic at Children’s Mercy Hospital, a clinic that addresses the medical and therapeutic needs of children with Down Syndrome from birth through adolescence. FDFDS also provides significant funding for research taking place at Children’s Mercy Hospital that is exploring the link between Down Syndrome and leukemia.

There are hundreds of families in the Greater Kansas City area caring for a loved one with Down Syndrome. Without First Downs for Down Syndrome, these families would not have local access to vital medical, emotional, educational and support services.

FIRST DOWNS FOR DOWN SYNDROME'S MISSION

The mission of First Downs for Down Syndrome is to raise money for the Down Syndrome Guild, the Down Syndrome Clinic at Children’s Mercy Hospital and other Down Syndrome organizations; to raise awareness of Down Syndrome and the services of the Clinic and the Guild; and to create positive images of those with Down Syndrome.

ABOUT DOWN SYNDROME

Down Syndrome is the most commonly occurring genetic condition. One in every 800-1,000 live births, is a child with Down Syndrome, representing approximately 5,000 births per year in the United States. Today, Down Syndrome affects more than 350,000 people in the United States. It is one of the leading clinical causes of intellectual disability in the world.

All people with Down Syndrome have an extra, critical portion of the number 21 chromosome present in all, or some, of their cells. This additional genetic material alters the course of development and causes the characteristics associated with the syndrome.

There is a wide variation in the abilities, physical development, behavior and personalities of individuals with Down Syndrome. Each individual has their own unique personality, capabilities and talents.

With appropriate education, therapy, and social support, the majority of individuals with Down Syndrome can lead fulfilling and productive lives.

Saturday, August 29, 2009

First Downs for Down Syndrome




This is a poster my son's school did to promote First Downs for Down Syndrome. It turned out pretty good!